Experienced Patients are not medically trained or otherwise professionally qualified in health-related disciplines. They are not permitted to give advice, particularly medical advice, which may be defined as attempting to diagnose, treat or cure an illness or injury. They may only share information on their own experiences and provide moral support.
Patients should not construe anything which an Experienced Patient says or writes as advice, medical or otherwise. By making an appointment with an Experienced Patient, patients are expressly agreeing to this.
I am a mum to 3 year old daughter, a long term sufferer of ME and fibromyalgia ( over twenty years) Behcets syndrome,COPD, fertility issues, and suspected Dysautonomia, EDS, MCAD, and possible neuromuscular problem. I have Eczema, arthritis, and depression. The battle we face can be a hard one but with the right support and a little determination we can educate ourselves as to what aids our body, sometimes coping is hard but we have the support of each other. It's very much trial and error at times, what helps one person may do nothing for another, the financial constraints many face is also difficult, but every little change we make could help. Small changes come together over time and can ease symptoms. It can take time for things to have a positive effect but it's worth hanging in there to see if things help. I am a believer that we have to persevere ourselves, I've suffered twenty years of dismissal and fob offs by hospital consultants, but I'm slowly getting there and you can too. Much luck.
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